I sent an email to friends in our Colorado community today. I include it here to provide an update on our home and health.
We signed a 12 month lease Friday and it became real that Monument will not be our home for awhile. I knew, then, that I wanted to update our community of friends who have offered such support these last two years. It's hard to believe that school is beginning soon for all of you. I will so miss that first day of school.
We continue to progress here. The climate is a contributing factor to this, even in the dog days of summer. We were at 107 yesterday. The progress is slow. Very slow. Some days I can't see it. Last night, as I watched all of them play at the park, I saw it.
Brandon: His neurological recovery continues. He's much calmer and able to sit still. His rashes have greatly improved. He is extremely sensitive to any and all chemicals and his eyes will redden immediately. He continues to suffer severe nosebleeds.
Colin: his migraines are infrequent. Abdominal pain is rare. His blood sugars are still erratic. And just last week colonized fungus appeared all over the backs of his legs. This shows the de-tox is working. It also shows how far we have to go. He and Brandon are on a baseball team.
Kaitlyn: is extremely sensitive to the environment. Her immune system is so taxed that we had to stop her horseback riding lessons for awhile. She struggles with rashes and strong allergic reactions. Her vision has improved and she is back to reading! She has two friends and is excited about our new house.
Reagan: his light sensitivity has improved. Rarely has a migraine. Is still dizzy and struggles with the tinnitus. We are going after this intensely and he has had moments of no dizziness. This is very hopeful. He has become quite the magician and has some amazing card tricks up his sleeve.
Kristen: is chronically fatigued. Her pituitary was hit hard so we have been working on this. Her peripheral neuropathy is still an issue. She may try a few classes at the local high school. She loves photography--especially the Arizona sunsets.
Ryan: has decided against the conservatory in New York for financial and logistical reasons. The focus of his future has changed as well. He has responded well to the de-tox and is the healthiest I have seen him in years. He is meticulous about his diet. No gluten, sugar, etc. His digestive system was hit hard by the mold. Some exciting opportunities have already come his way.
Shannon: is working hard at her recovery. Her dedication is an inspiration. She loves the hiking here and is looking into possible classes in the fall.
Megan: is struggling. Her road to recovery will be long due to the complications from her Africa and Peru trips. Exposure to toxic mold becomes a breeding ground for parasites and other microbes. She has done some amazing video projects and continues to persevere.
Erin has decided to join us for a few months. Her rashes continue (which simply means there are more mycotoxins to come out) and her fatigue level is abnormally high, another common occurrence after a mold exposure. She is going to miss Rosie’s terribly. And I know many of you will miss her
Chris is doing well. Dogwood won an award recently and he's excited about his new book, June Bug. He is the most chemically sensitive of us all. I am grateful he can work from home in a "known" environment. He has been an amazing rock of support for me. He has gotten me up off the ground many days by his wisdom and humor. I don't know what I would do without him.
As for me, I lost my mother unexpectedly on May 21st. She died of a brain hemorrhage following a severe coughing fit. My brother, my dad, and I were all with her and I am grateful I had the opportunity to say goodbye. She was a tremendous support to me these last two years and I miss her. A lot.
My health has been more of an issue in this last month as I have taken the much needed steps to recover. I am focusing on clearing my liver of mycotoxins, something my blood testing showed was a serious issue, and it has created a "die-off" which means the microbes are killed and then create sickness. My memory remains an issue and I miss it! So do my kids!
I continue my blog and have met other mothers just like me. I have secured the website "Moms Against Mold" and will continue my passion to get the word out
We have been living in a 1700 square foot home in the middle of nowhere. Eight of us sleep on air mattresses in one room. There are two bathrooms. Our next home is about 3500 square feet and the good news is, we gain 1 more bathroom! It is on an acre and backs up to a sandy area known as a “wash” where rainwater rushes through after a monsoon. It stays sandy most of the year.
We walked through the home with the builder last week. He agreed to rent to us even after hearing our story. I have a good gut feeling about the home as it is all electric and lots of tile and it has never been lived in. Still, a move brings back lots of fear and trauma. We have to continue to move foward, however, and this is a good next step.
Our home in Colorado remains just as we left it. A friend is cutting the grass for us. The home is still contaminated. We have a forbearance on our mortgage which enables us to pay the rent here. If anyone would like either of our trampolines let me know! We are pursuing legal action as this is what keeps the forbearance and keeps us from foreclosure.
I don't know what our future holds. I do know that my faith is not in the legal system or the medical world. It's definitely not in myself. I do believe that our story is bigger than our present circumstances and all of you have played an important role in it. You came alongside of us in critical ways in the days following our evacuation from our home. Thank you.
I conclude with this quote by Albert Einstein which has meant a lot to me.
"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others...for the countless unknown souls with whose fate we are connected by a bond of sympathy. Many times a day, I realize how much my outer and inner life is built upon the labors of people, both living and dead, and how earnestly I must exert myself in order to give in return as much as I have received.”
good words! glad to get the full update... what a crazy journey this is for all of us huh?
ReplyDeleteI just printed this off, so we can pray for each of you specifically. This inspires me to try to write an update. Isn't it something how so many differing symptoms can occur with individuals of the same family?
ReplyDeleteTake care and may God continue to be your strength and hope.
just reading this post convinces me even more that my house is toxic.
ReplyDeleteAfter listening to your radio broadcast about your mold problem, our heart has gone out to you. We also are experiencing the same thing in a building but we aren't living in yet! We took the ERMI test and recieved a score of 8. My husband and I are anticipating moving into this building for fulltime ministry but are very leary because of the mold that has exploded in the house each spring. My hope is that they tear the 100 plus year old building down however it looks like they will be taking care of the problem themselves. Do you have any suggestions about what we should do???? Our ERMI score was 8 with about 19 percent of that being aspergillis.
ReplyDeleteThank you for the update...I listen to Chris and you when I am able. I have been praying for you and sharing your link with others....especially my friends I believe have been exposed to black mold. What a blessing you are for the Kingdom...thank you again for your honesty and vulnerability. Blessings in our Lord, Melinda
ReplyDeleteDear anonymous,
ReplyDeleteI'm glad your asking this hard question. I can assure you that an ERMI score of this nature constitutes a health risk to you and your family.
I think this is your gut feeling. Listen to it.
I would be happy to answer any follow up questions at
akfabry@comcast.net
My heart goes out to you and your whole family. I love what you've included about the positives of each person in the family..a reminder that we are ill but we are not our illness. My husband and I were exposed in a small house we bought in GA 2002-2004, and he died of Sarcoma, which I believe was mold-related. I got MCS and still have symptoms. I have never been tested for mold, nor treated....just trying to find a safer place to live, eating well (gluten, sugar, yeast-free) and using some supplements. Your blog is just what I needed to find.
ReplyDeleteThe Canary Report.org site has been a blessing in many ways, also, as it informs me a lot about MCS. I have lost just about everything dear to me, including my ability to work productively. At 65, I still want to work!!! :)
God bless you all,
Ruth/Wisconsin
So glad to read your update and that you are seeing progress. I pray for your family every morning and this update will help me to be more specific in my praying. May God continue to heal you and give you strength for this journey.
ReplyDeleteRuth,
ReplyDeleteI tried to email you back thru your blog but was unable to do so. I'd love
to hear more about your story!
my email
is akfabry@comcast.net
thanks for your encouraging words.
Andrea