The following is another story of toxic mold exposure. It's the story of a woman who, like so many hit with the mysterious and unexplainable symptoms, began to question her sanity.
Up until August the symptoms that I had been struggling with, and somewhat managing, were headaches, head fog, breathing difficulties (unable to get a full breath), constant scalp tingling, migraines, nausea, feeling spacey/detached, and severe itchy skin. Every morning I woke up feeling like I was coming off of some weird drug, like anesthesia. I would stumble out of bed. This feeling would usually wear off by mid-morning, except on the weekends it never went away. My right ear was sensitive to certain sounds, one of the main reasons I’d become a recluse. Each morning for the first few hours I would clear freakish amounts of mucus from my sinuses. This increased so gradually that I became conditioned and sadly didn’t give it the attention I wish I had, because this was a symptom that possibly would have put me on the path of discovery sooner. After numerous medical appointments, I gave up trying to seek answers from doctors. Plus any medicines given only made me feel worse. My dog was also having weird breathing problems—she would often hyperventilate, and the vet had no idea why.
These symptoms would wax and wane—common with mold, because the spores can go dormant and then when disturbed or moisture conditions become just right, they again release toxins in the air. Because of this pattern I thought I was going crazy, and I‘m sure others thought so, too.
When my symptoms were bad I’d simply tell people "my migraines are back," referring to all the above rather than giving details. As I became sicker I left the house less frequently, so a vicious cycle developed. The more I stayed home, the sicker I became.
It never occurred to me that my house could be making me sick. And even later on when others began to make the connection, I dismissed the idea. It sounded so far-fetched. Like most people, I thought that mold could only cause allergic/respiratory type symptoms. I had no idea that it could cause neurological symptoms and damage the central nervous system.
Then she thought about her toilet that had overflowed onto her bedroom carpeting. She tested her home and found high levels of aspergillus/penicillium in her bedroom wall and carpet.
The spore count (even with my five air filters running) was off the charts. A spore count over 650 is considered unsafe, and mine was in excess of 200,000. Maybe I’m not crazy after all.
Before these test results she contemplated the possible causes of her mysterious symptoms. She entertained all sorts of possibilities, such as:
a) I'm losing my mind.
b) Post-traumatic stress from my head injury (5 years ago) is making me create somatic symptoms.
c) Aliens are abducting me nightly and drugging me. This explains the way I feel every morning.
d) The Klonopin I took for migraines two years ago somehow damaged my brain and central nervous system during the withdrawal.
e) The woman who died in this house before we moved in is haunting me and making me sick.
f) Someone is poisoning/drugging me.
g) I’ve turned into a hypochondriac.
Or the final option:
h) It was all from the mold and now I finally understand what is going on with my body.
Her story continues to this day as she struggles with residual health issues. She struggles to find safe housing as well. Still, life has improved. And like most of us impacted by toxic mold, she has gained immeasurable amounts of knowledge.
Knowledge she hopes to impart to others by sharing her story.
Wow! I love her list....very funny yet sad at the same time. I can relate to many of those! Thanks for posting!
ReplyDeleteUnfortunately, a story many of us know oh so well. Thank you for posting. I am going to send to a friend who is dealing with these symptoms. Her husband doesn't believe that mold can cause severe trauma to peoples bodies. He is one of those many who think mold only affects a very minute amount of people and the symptoms must be from something else. Maybe this will help! Thank you Andrea!
ReplyDeleteI relate to this list and her symptoms as well. Our house was built 5 years ago (we built it and have relatively NO moisture during framing/sealing) But my symptoms started before that. All of our previous housing for the 10 years of our married lives has been mediocre, with black mold in the bathroom up by the drop ceiling of our basement apartment, before that we lived in our double-wide, 10 year old "modular" home, and our first home as a married couple - a shoddy duplex. We were so aware of breathing problems while in that 70's apartment, that we built our new home to have very little carpeting.
ReplyDeleteNow we all have allergies, including the 3 year old dog. My husband and I have headaches half the time and are always congested. My oldest (8) is always sounding congested. I always have brain fog and all this lack of motivation due to us always being tired/sick is exacerbating depression. I'm trying to convince my husband that we should get an air test in our home, but we are starting with allergy tests for all of us. (funny, the dog was the first one to have them done). Your blog is very encouraging to me. Even if it isn't mold that is bothering us... we'll see.
Thank you to your friend for sharing this! I also appreciated the snippets i heard (mentioning how mold can affect the brain, causing memory fog) on the Chris Fabry Live broadcast today with the specialist in brain function.
ReplyDeleteAndrea,
ReplyDeleteYour friend put into words what I was unable to for a long time. Her story is very similar to mine. I went for 3 1/2 years without answers. I finally decided to test our home and we found Pen/Asp too. The medical profession needs to start educating doctors on this in medical school. I believe there a lot more of us out there who feel awful but doctors are missing it because they are not ordering the correct tests and the ones they do order are normal. It is a horrible feeling to think you are going crazy and have no one believe you. I am starting to recover but as you know it is slow.
Thanks to you and your blog people can get information about mold and what it can do. I know if I had talked to you and Tonya I would not be on my road to recovery!
Thanks again,
Stacy
I can relate to this and the alien abductions/hauntings are interesting. I have a friend living in a moldy home and she thinks it's haunted. Sadly, she refuses to believe her symptoms are form mold cause her kids aren't "sick"
ReplyDeleteThank you so much for sharing this--I have been online searching for information about whether or not my beautiful historic register 1924 Los Angeles apartment could be making me sick. I'm realizing, after reading your list, that I need an inspector to take a look. I too have wondered if I am going crazy, if I am haunted, or if this place is haunted, and wondering why I went from someone with boundless energy to someone who is so exhausted I can barely hold my head up at home.
ReplyDeleteDo you know of any do it yourself mold test kits?
Monica,
ReplyDeleteSounds like it's a good idea to test your apartment. There are two labs that offer home kits. They are listed under the entry "Where do I begin?" which appears under the slideshow. If you have trouble finding this let me know. You can email me at andrea@chrisfabry.com
You are wise to connect environment with your health.