Renewed Hope

4 comments
It's been a rough week. I'm overwhelmed as I look ahead. We've encountered new challenges. Many old ones remain.

Sometimes it helps to look back when discouragement comes knocking. Colin kept a journal in the weeks following the evacuation of our home. I pulled it out yesterday.

He was a month away from his 9th birthday. The rashes on the back of his hands were painful and bloody. He had been to the ER two weeks prior for a migraine. His failing pancreas was the least of his worries.

10/27/08
Dear Journal,
I am probably the sickest man alive. Boy do I feel bad. Everything started when I woke up this morning. My head was booming inside of me or throbbing is the word I would use but my stomach hurt, my legs and my hands were numb and I could barely even walk up the stairs and I couldn't write of course.

10/29/08
My head, my chest and my stomach are worse than ever. I need your help if you're out there.

10/30/08
Thinking about the house is hard because thinking of all the fun things we did is hard. Thinking about my dogs Pippen and Frodo is really hard. Especially Pippen. He was my diabetic buddy.

Tomorrow is Halloween and I'm not sure I can eat any of my candy cause I'm sick. I've almost missed a week of school because of my exploding head and my booming chest and my buzzing stomach but at least I'm going to get better and maybe next Halloween I'll be able to eat all my candy in one night. I'm sure I'm going to get better journal. I promise you I'll get better.

Colin hasn't had a migraine for almost 2 months now. He doesn't use his reading glasses. He rarely complains of abdominal pain. His rashes are gone.

And he plays on a baseball team.

We've come a long way. I almost forgot.

4 comments :

  1. It's hard to believe we are talking about the same boy. I have only seen Collin as a kind, good-natured person with a lot of willingness to work hard and be helpful. I'm sad to know he - and you all have been through this terrible experience, but I also have a sense that you all have a deeper understanding of how others suffer and have a greater capacity for empathy and compassion.

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  2. Hi Fabry Family,

    I have been following your story and praying for your family. I know you all are doing tons of research, but was wondering if you have heard of this guy yet http://www.knowthecause.com. His name is Doug Kauffman, I have been reading his articles and listening to his programs for over 8 years.

    prayers

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  3. Yes I am familiar with Doug Kaufman. His anti-fungal diet has been of immense help to us.
    His link with illness and fungus is eye-opening.
    Thanks for mentioning it.
    Andrea

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  4. I just saw a 'Forensic Files' show named "Breaking the Mold" re-aired on truTV at 3 am EDT 06/30/09. Wow, that show put what you all are going through into visual perspective. The poor father depicted in that show couldn't even remember his son's name and had to resign his job post due to mental inability. I'm glad you all got out when you did. You are not alone in this.

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