Showing posts with label update. Show all posts
Showing posts with label update. Show all posts

Personal Update

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I sent an email to friends in our Colorado community today. I include it here to provide an update on our home and health.

We signed a 12 month lease Friday and it became real that Monument will not be our home for awhile. I knew, then, that I wanted to update our community of friends who have offered such support these last two years. It's hard to believe that school is beginning soon for all of you. I will so miss that first day of school.

We continue to progress here. The climate is a contributing factor to this, even in the dog days of summer. We were at 107 yesterday. The progress is slow. Very slow. Some days I can't see it. Last night, as I watched all of them play at the park, I saw it.

Brandon: His neurological recovery continues. He's much calmer and able to sit still. His rashes have greatly improved. He is extremely sensitive to any and all chemicals and his eyes will redden immediately. He continues to suffer severe nosebleeds.

Colin: his migraines are infrequent. Abdominal pain is rare. His blood sugars are still erratic. And just last week colonized fungus appeared all over the backs of his legs. This shows the de-tox is working. It also shows how far we have to go. He and Brandon are on a baseball team.

Kaitlyn: is extremely sensitive to the environment. Her immune system is so taxed that we had to stop her horseback riding lessons for awhile. She struggles with rashes and strong allergic reactions. Her vision has improved and she is back to reading! She has two friends and is excited about our new house.

Reagan: his light sensitivity has improved. Rarely has a migraine. Is still dizzy and struggles with the tinnitus. We are going after this intensely and he has had moments of no dizziness. This is very hopeful. He has become quite the magician and has some amazing card tricks up his sleeve.

Kristen: is chronically fatigued. Her pituitary was hit hard so we have been working on this. Her peripheral neuropathy is still an issue. She may try a few classes at the local high school. She loves photography--especially the Arizona sunsets.

Ryan: has decided against the conservatory in New York for financial and logistical reasons. The focus of his future has changed as well. He has responded well to the de-tox and is the healthiest I have seen him in years. He is meticulous about his diet. No gluten, sugar, etc. His digestive system was hit hard by the mold. Some exciting opportunities have already come his way.

Shannon: is working hard at her recovery. Her dedication is an inspiration. She loves the hiking here and is looking into possible classes in the fall.

Megan: is struggling. Her road to recovery will be long due to the complications from her Africa and Peru trips. Exposure to toxic mold becomes a breeding ground for parasites and other microbes. She has done some amazing video projects and continues to persevere.

Erin has decided to join us for a few months. Her rashes continue (which simply means there are more mycotoxins to come out) and her fatigue level is abnormally high, another common occurrence after a mold exposure. She is going to miss Rosie’s terribly. And I know many of you will miss her

Chris is doing well. Dogwood won an award recently and he's excited about his new book, June Bug. He is the most chemically sensitive of us all. I am grateful he can work from home in a "known" environment. He has been an amazing rock of support for me. He has gotten me up off the ground many days by his wisdom and humor. I don't know what I would do without him.

As for me, I lost my mother unexpectedly on May 21st. She died of a brain hemorrhage following a severe coughing fit. My brother, my dad, and I were all with her and I am grateful I had the opportunity to say goodbye. She was a tremendous support to me these last two years and I miss her. A lot.

My health has been more of an issue in this last month as I have taken the much needed steps to recover. I am focusing on clearing my liver of mycotoxins, something my blood testing showed was a serious issue, and it has created a "die-off" which means the microbes are killed and then create sickness. My memory remains an issue and I miss it! So do my kids!

I continue my blog and have met other mothers just like me. I have secured the website "Moms Against Mold" and will continue my passion to get the word out

We have been living in a 1700 square foot home in the middle of nowhere. Eight of us sleep on air mattresses in one room. There are two bathrooms. Our next home is about 3500 square feet and the good news is, we gain 1 more bathroom! It is on an acre and backs up to a sandy area known as a “wash” where rainwater rushes through after a monsoon. It stays sandy most of the year.

We walked through the home with the builder last week. He agreed to rent to us even after hearing our story. I have a good gut feeling about the home as it is all electric and lots of tile and it has never been lived in. Still, a move brings back lots of fear and trauma. We have to continue to move foward, however, and this is a good next step.

Our home in Colorado remains just as we left it. A friend is cutting the grass for us. The home is still contaminated. We have a forbearance on our mortgage which enables us to pay the rent here. If anyone would like either of our trampolines let me know! We are pursuing legal action as this is what keeps the forbearance and keeps us from foreclosure.

I don't know what our future holds. I do know that my faith is not in the legal system or the medical world. It's definitely not in myself. I do believe that our story is bigger than our present circumstances and all of you have played an important role in it. You came alongside of us in critical ways in the days following our evacuation from our home. Thank you.

I conclude with this quote by Albert Einstein which has meant a lot to me.

"Strange is our situation here upon earth. Each of us comes for a short visit, not knowing why, yet sometimes seeming to a divine purpose. From the standpoint of daily life, however, there is one thing we do know: That we are here for the sake of others...for the countless unknown souls with whose fate we are connected by a bond of sympathy. Many times a day, I realize how much my outer and inner life is built upon the labors of people, both living and dead, and how earnestly I must exert myself in order to give in return as much as I have received.”
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Update from Andrea

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My precious mother passed away peacefully shortly after midnight last night. Her greatest fear in life was to be disabled after a stroke. She told me that two weeks ago. She told me that two months ago. It was something that haunted her. My dad and brother and I have been united each step of the way and are grateful this morning that she is free from all pain. She was my biggest cheerleader these last two years. I will miss her terribly.
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Simple Pleasures

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We have internet. The last 3 weeks have been the darkest yet. We have made it through. As I reflect on this latest chapter I stand amazed that a connection to the internet and a new phone mean this much. I am grateful to all of you who continue to stand with us.
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From Andrea's husband Chris...

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Due to some circumstances beyond our control, Andrea hasn't been able to update her blog. We are living in a small town in Arizona that has little Internet access.

Thanks for your prayers for us. More news is forthcoming. We are in a rental now that we believe is clean and will help us stage our assault on the maladies we've been facing. Have a great weekend.
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Update

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The home fell through yesterday afternoon. We were surprised by this and disappointed. Today we're confident that it's best for all of us. I think we have found a vacation rental that would work for our immediate future. I continue to learn more than I ever intended about disappointment including the fact that there is , indeed, life after it.
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Timeline of Events

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We are still searching for a place to settle. Today the realtor suggested adding a clause in the rental agreement which allows for a possible adverse health reaction. Seems like a good idea.

I have written a timeline which details the years preceding our journey to Arizona. It is titled "Our story" and can be accessed under Helpful Links. 
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Quick Update

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We came close to finding a home today. It was perfect with the exception of a steam shower/sauna in the home. The mildew smell in the shower is too risky for us.
We are learning so much about our specific needs. Lots of ceramic tile, little landscaping and lawn care, high ceilings, and out of the city. We have a realtor looking for us. She is going above and beyond. We have lost a number of critical things due to our flight from the rental home so we're trying to get new diabetes supplies, contact lenses and such.
The nurse from Kristen's cactus spine removal called me today. (see previous post: flip flops in the desert).She volunteered last week at the local Extreme Home Makeover location. She talked with the staff about our story. They told her to write a letter about us. I can't believe she tracked me down to ask for more information.
I know some of you are following us closely this weekend and I want to tell you how much I appreciate your concern.
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Providential Phone Call

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We are spending our 3rd night in a hotel in Benson. We know nothing more about our future than we did yesterday. At this point there's not a place on earth that feels safe. We've considered camping as an option. Hotels don't seem safe. New homes don't seem safe. Old homes don't seem safe. The biblical concept that earth is not our home has taken on new meaning. The owner of our rental home graciously tracked down all of the specifics regarding the pesticides. I am waiting to hear from our toxicologist regarding potential contamination of our belongings. Until 3 days ago I knew nothing about our vulnerability to pesticides. Now I do. As a friend pointed out, better now than the day after we purchase a home. Nonetheless, we are struggling. Deeply. In the midst of it all I received a phone call this afternoon. The kids and I had visited a church January 25th. I filled out a visitor's card and searched out a welcome table after the service to drop it off. I knew that it could be awhile before I'd hear.It's a big church and I would understand if I never heard at all. Besides, I can always call them. But in my darkest hour...at 2:30 this afternoon...my cell phone rang. It was a pastor from the church. I don't know what kind of day he was having or why he called me today. I wonder if it was hard on this particular Wednesday afternoon to reach out to a stranger. I do know that he sat and listened as I cried and shared. He understood that there was more to our story than he heard in those 5 minutes. He offered to help in whatever way he could. But, in reality, he already has. He was the instrument God used to let me know that we are never alone. Never.
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